Course curriculum

    1. Welcome

    2. Fragile X: An Overview and Introduction to Care Mapping- PART 1

    3. Fragile X: An Overview and Introduction to Care Mapping- PART 2

    4. Additional Resources

    5. Fragile X: An Overview and Introduction to Care Mapping Online Course Feedback- Optional, but much appreciated

About this course

  • Free
  • 5 lessons
  • 1 hour of video content

"Living and Learning the Fragile X Way"

An Overview and Introduction to Care Mapping

In honor of World Fragile X Awareness Day, we are so excited to share this resource with you and to provide a preview of the offerings that will be available through our upcoming Fragile X Academy. Grounded in decades of research and experience working with the Fragile X population, The Fragile X Academy will provide training series for parents, caregivers, therapy providers, and school teams that promote a deeper understanding of Fragile X syndrome and best practices for ‘living and learning the Fragile X way.’ In Part 1, Tracy provides a brief overview of Fragile X syndrome and an introduction to the benefits of using care mapping to promote comprehensive, Fragile X informed care. In the second video, viewers have the opportunity to watch as Tracy and Karen walk through the care mapping process in relation to Karen’s son with Fragile X syndrome. We hope you find this information valuable and we look forward to the launch of The Fragile X Academy later this year.

Instructor

Director of Innovation & Co-Founder, Occupational Therapist Tracy Stackhouse

Tracy Murnan Stackhouse, MA, OTR, is the Director of Innovation & Co-Founder of Developmental FX. She is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. Tracy has a master’s degree in developmental psychology/neuroscience. She is the lead author for the SpIRiT & S.T.E.P.S.I. Clinical Reasoning Tools which are leading-edge evidence-based models in pediatric OT. Tracy is a member of the National Fragile X Foundation Clinical Research Consortium, the Scientific And Clinical Advisory Committee, and the NFXF Advisory Council and an expert advisor to the CDC and RTI Fragile X Priorities Panel.